• Acoustic Neuroma Diary
www.20six.co.uk/headcase
This website is in effect an online journal. It is written by a gentleman who has had an acoustic neuroma removed. He started the blog when he was first diagnosed and continues it to date. He talks very frankly about the different stages of his recovery and what makes it interesting is that it is not a retrospective account he writes it exactly like a diary and does not know what the next month will bring.
• Neuro 4 Product Information
www.mdhealthcare.co.uk
More detailed specifications of the unit and a currency converter are available on this site.
• BANA
The British Acoustic Neuroma Association is a patient support group which provides a regular newsletter, local group meetings and lots of advice and support from diagnosis onwards.
www.ukan.co.uk
• Bells Palsy
The bells palsy association website combines facts and information on the condition with chat rooms for its members to discuss all problems and treatment options.
www.bellspalsy.org.uk
• Moebius Syndrome Support Groups
www.moebiussyndrome.com
This site is the central site for North American Moebius Patients – but welcomes international visitors to it ranks.
www.ohiomoebiussuppport.com
This site is for the Ohio group but welcomes other visitors. There is a lot of useful information including how to purchase several relevant books, it also has details on useful products ranging from feeding bottles to brushes etc for oral stimulation.
• Other
www.ii-group.com/amnet
This site is for the members of AMNET which is an organisation based around the Addenbrooks Hospital in Cambridge supporting patients following the removal of acoustic neuroma and meningiomas.
www.letsfaceit.co.uk
This is the site for information on a book called Lets Face It written by Julie Ashby on the first year after acoustic neuroma surgery. It is a well written book and we at the Lindens think it is compulsory reading.
www.changingfaces.org.uk
This is the site for the charity Changing Faces. The charity support people with all types of facial disfigurement or paralysis. It offers advise, support and workshops for people of all ages and importantly for parents of children with facial problems.
www.herpes.org.uk/shingles.htm
This site is the official herpes site. It offers good advice on the treatment of Post Hepatic Neuralgia – the long term pain associated with shingles. It is not specifically face based.
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